Question:
Sandra hang in there. Can you get an appointment to see a neurologist ‘cos its unusual to have migraines then seizures for so long without an organic cause. I don’t want to sound alarmist but I think there are 2 distinct problems- PTSD and migraines that has confused the medico’s. Its easier for them to label it as a psychiatric condition but I believe you warrant further investigation. At the least a CT scan! I didn’t realize how ill you were, one thinks their own problems are bad enough until you hear from people like yourself. Just keep going, keep posting, good luck Barb
Response:
Hi Barb, I do see a neuro. In fact I have seen several. Even my psychiatrist is a neuro. I have had the MRI’s and catscan. Everything looks ok which is good. No tumors. You are correct about one thing though. My doctors have explained it this way to me. That all of my symptoms are like branches on a tree and the trunk is the root cause which they haven’t discovered yet. They said that with me, though, they think I have more that one or two trunks, and it is hard to diagnose me. That is why the say I am so rare and that I am being seen by research doctors instead of regular ones now. I was referred to them about a year ago. They don’t take regular cases, just rare ones with complicated diagnosis. I guess that means I will still get to continue seeing them for a while now. Please don’t feel so bad for me. I will get better and everything is relative to where you are from my experiences, so I wouldn’t say that I am any worse or better than anyone else. Just a bit more strange. 
I do get down sometimes. Last week I had a real good cry and I felt better afterwards, s********** does cross my mind everyonce in a while, but generally I take it in stride. I just continue to work at getting better and thank God for my family because of all the support they give me. I couldn’t do it without them or my faith in God. Thanks for your concern and suggestions. That helps as much as anything. I have learned a lot from listening to others and using that info to try to help me and I don’t feel all alone with friends to talk to. I just wish it was next month already. I feel like such a burden on my family and I am not getting things done that need to be done. Love, Sandra BJ&GJC <cook…@primus.com.au> wrote in message
news:931748846.728540@diddley.primus.com.au… – Hide quoted text — Show quoted text -> Sandra hang in there. > Can you get an appointment to see a neurologist ‘cos its unusual to have > migraines then seizures for so long without an organic cause. I don’t want > to sound alarmist but I think there are 2 distinct problems- PTSD and > migraines that has confused the medico’s. Its easier for them to label it as > a psychiatric condition but I believe you warrant further investigation. At > the least a CT scan! > I didn’t realize how ill you were, one thinks their own problems are bad > enough until you hear from people like yourself. > Just keep going, keep posting, good luck Barb
Response:
Hi Emma, Thanks for posting that –I too suffer from lack of sleep and night sweats and nighmares. Heck I have benn like that for so mabny years it was almost "normal." The doc put me on Trazedone and I swear it is a miracle pill for me. I am very sensitve to any/all drugs and a low dosage seems to do the trick for right now. That conbined with the cognitive therapy my therapist is using and I feel some positive growth for me for the first time ever. Thanks again, jeannie
Response:
At the recent meeting of the New Clinical Drug Evaluation Unit Program of the National Institute of Mental health, a poster the control of flashbacks and traumatic nightmares by the use of topiramate (Topamax) was presented. Topamax is the first medication that seems to stop flashbacks and traumatic dreams in a good percentage of people with PTSD who are treated with it. For additional information about Topamax and its use to treat people with PTSD, please see: http://www.psycom.net/depression.central.topiramate.html Best regards . . . Ivan %%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%% In article <19990709082117.20246.00009…@ng-fu1.aol.com>, jst42da…@aol.com (Jeannie) wrote: – Hide quoted text — Show quoted text -> Hi Emma, > Thanks for posting that –I too suffer from lack of sleep and night sweats and > nighmares. Heck I have benn like that for so mabny years it was almost > "normal." The doc put me on Trazedone and I swear it is a miracle pill for me. > I am very sensitve to any/all drugs and a low dosage seems to do the trick for > right now. That conbined with the cognitive therapy my therapist is using and I > feel some positive growth for me for the first time ever. > Thanks again, > jeannie
– Ivan K. Goldberg, MD 1556 3rd Ave. New York, NY 10128 212-876-7800 120 N. Main St. New City, NY 10956 914-282-8192 http://www.psycom.net/depression.central.html Sent via Deja.com http://www.deja.com/ Share what you know. Learn what you don’t.
Response:
Emma, this is my resource area that my psychiatrist put me onto. Very accurate and up to date. I have been put onto nefazadone many months ago and my sleep has improved tremendously. Used to only get 5-10 minutes sleep a night for 9 months because of PTSD-flashbacks, night terrors, and the fact my assaults/torture happened on night shift hence a state of hypervigilence during those hours. Sleep deprivation causes other biochemical and physical problems in itself. Which came first? Whilst hospitalized the Dr. tried a cocktail of : 4 mogadon (nitrdiazepam), 25mg phenergan (antihistamine), 10mg diazepam (valium) and Doxepin (antidepressant) with the result of 2 hours sleep- still no good, enough to kill a horse though. I’ve been sleeping real well since switched over to nefazadone. This drug is a new anti-depressant with known PTSD and sleep effects. Barb
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