Question:
Kathi, I’m so sorry to hear this. Hang in there and have faith. Positive thinking can do wonders. Think he will make it, know he will make it and make it your job to get him to make it. Prayers and best wishes to you both, Dana
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Kathi, I was so sorry to hear your S"O’s lung surgery turned out to be cancer… On the hopeful side it wasn’t in his nodes and non small cell adenoma is the best type of lung cancer you can get. It’s very risky for him to drive as he still stands the chance of a collasped lung this soon after surgery.. I was told it is the most painful surgery there is . Kathi I beg your secrecey on this It was me than had lung cancer not a relative. I’m telling you because I want you to tell the man you love so much that he can e-mail me any time and there is hope. I just had my chest x-ray yesterday morning at 9:00 am ad I’m still looking good… 5th year….. I have learned alot about lung cancer and the university of Texas is making a lot of head way…. It’s South Western Universty of Texas…. Hugs and hope to you both…. I’m here for you both any time…. P.S…. Sorry about my telling you lies in the beginning about a relative having lung cancer. It does happen to be a disease that scares people so bad that many friends soon dissapear out of your life… But the true ones hang around and with in months you really know who the true ones really are… I know I should clean this post up but I just want to get to you as fast as I can…. Again please don’t mention this to any MS’ers I need them and cancer might scare them away…..dory
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Dear Kathi, I am so sorry, I hope all this turns out well for your s.o and you. Peace, Bonnie
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In article <Fo2×00….@world.std.com>, eh…@world.std.com (ed hill) writes: >some researchers consider depression and anxiety to be part and parcel of >MS. i agree with ‘em.
If you were depressed or anxious before, ms can sure do it to you. thank god for prozac. And some "alternative" therapies :=} Kathi
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And I guess I am still numb. We were told it was cancerous, then benign (which Iannounced to everybody at church last week) and then on Tuesday — adenocarcinoma. Of the four kinds of lung cancer, it is the "best" — that is, it is operable. But I also read survival statics — only 40% make the first year, only 10% make 5 years, and I was starting to grieve before anything happened. Then I had a week of thinking it was benign. I was so relieved. But now I have to deal with the cancer again. I am so afraid of losing him. He is being real macho and actually drove the day after he got out of the hospital (while I was out at church!), told me about it yesterday! I mean, they took his whole lung out and he’s driving? He just can’t sit still. He’s talking about going back to work tomorrow. It’s not realistic. I know he doesn’t like sitting around, but he’s still in a LOT of pain. He won’t even get his industrial strength staples out til next Tuesday. Fortunately, the weather has been excellent — 70 today and high sixties throughout the week. But still……….. Need a bunch of hugs, Kathi
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I know from experience (we probably all do), and it is much easier to say than to do, but try to live one day at a time. Nothing else will change the outcome. Make every day count. 13 years ago my father had throat cancer – they gave him a 30% chance, and he’s still going strong. Wow, that almost sounds like preaching, but my thoughts are with you. Dawn L.
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On 13 Jan 2000 00:09:41 GMT, kamatth…@aol.com (Kathi Matthews) wrote: – Hide quoted text — Show quoted text ->And I guess I am still numb. We were told it was cancerous, then benign (which >Iannounced to everybody at church last week) and then on Tuesday — >adenocarcinoma. Of the four kinds of lung cancer, it is the "best" — that is, >it is operable. But I also read survival statics — only 40% make the first >year, only 10% make 5 years, and I was starting to grieve before anything >happened. Then I had a week of thinking it was benign. I was so relieved. > But now I have to deal with the cancer again. I am so afraid of losing him. >He is being real macho and actually drove the day after he got out of the >hospital (while I was out at church!), told me about it yesterday! I mean, >they took his whole lung out and he’s driving? He just can’t sit still. He’s >talking about going back to work tomorrow. It’s not realistic. I know he >doesn’t like sitting around, but he’s still in a LOT of pain. He won’t even >get his industrial strength staples out til next Tuesday. Fortunately, the >weather has been excellent — 70 today and high sixties throughout the week. >But still……….. >Need a bunch of hugs, >Kathi
Kathi, I’ll do "my dance in the driveway" for you and yours, that all becomes manageable and that you each can maintain the good life in Memphis. Donn
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On 13 Jan 2000 00:09:41 GMT, kamatth…@aol.com (Kathi Matthews) wrote: < snip > > But now I have to deal with the cancer again. I am so afraid of losing him. > He is being real macho and actually drove the day after he got out of the > hospital (while I was out at church!), told me about it yesterday! I mean, > they took his whole lung out and he’s driving? He just can’t sit still.
< snip > The fact that he was driving and not letting the surgery impact his sense of living is a great thing. It may be a sign that he will be one of the lucky ones who outlive the doctor’s predictions. Enjoy him while he’s here. Resuming as much "normality" as he can will certainly be therapeutic. Our thoughts are with both of you. Kris Lewis (real addy: [remove the spaces, of course] i t s i r k @ m i n d s p r i n g . c o m) Please, do not include me on your recipient list for bulk mailing. Thanks. I asked God for strength, and he gave me Richard … I count my blessings every day.
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So sorry to hear this, Kathi. Let’s hope he’s in the top 10% at least. Try not to freak out too much, but I know how you must feel. In case it helps, adenocarcinoma was one of the two types of cancer they found in my thyroid gland, and I’m still here, eight years later. No sign of a return. Hugs & prayers. Love Carmel – Hide quoted text — Show quoted text -Kathi Matthews wrote: > And I guess I am still numb. We were told it was cancerous, then benign (which > Iannounced to everybody at church last week) and then on Tuesday — > adenocarcinoma. Of the four kinds of lung cancer, it is the "best" — that is, > it is operable. But I also read survival statics — only 40% make the first > year, only 10% make 5 years, and I was starting to grieve before anything > happened. Then I had a week of thinking it was benign. I was so relieved. > But now I have to deal with the cancer again. I am so afraid of losing him. > He is being real macho and actually drove the day after he got out of the > hospital (while I was out at church!), told me about it yesterday! I mean, > they took his whole lung out and he’s driving? He just can’t sit still. He’s > talking about going back to work tomorrow. It’s not realistic. I know he > doesn’t like sitting around, but he’s still in a LOT of pain. He won’t even > get his industrial strength staples out til next Tuesday. Fortunately, the > weather has been excellent — 70 today and high sixties throughout the week. > But still……….. > Need a bunch of hugs, > Kathi
– " Don’t wait for a light to appear at the end of the tunnel. Stride down there and light the bloody thing yourself." www.cyberwizards.com.au/~carmel www.cyberwizards.com.au/~jaragun
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In article <387D8368.29AFC…@cyberwizards.com.au>, CPD <car…@cyberwizards.com.au> writes: >So sorry to hear this, Kathi. Let’s hope he’s in the top 10% at least. >Try not to freak out too much, but I know how you must feel. In case it >helps, adenocarcinoma was one of the two types of cancer they found in >my thyroid gland, and I’m still here, eight years later. No sign of a >return.
Thanks. I do know that it is one of the few lung cancers that is operable. And all the lymph nodes were negative. But those statistics — only 40% make the first year — scare me the shit out of me. I guess I should keep from getting hysterical til we see the onocologist in a week or so. Do you believe he DROVE the day after he got out of the hospital (5 days after surgery)? And has done it 3x since (that I know of!!!). And he is still in terrible pain and taking Percocet, which helps a little but not for more than a couple of hours. Most people can’t drive for 6 weeks. the doc said 2 weeks for him because he was so determined. But no, he had to do it right away. He won’t even get his staples out til next Tuesday. Kathi
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- Hide quoted text — Show quoted text -Kathi Matthews <kamatth…@aol.com> wrote: > And I guess I am still numb. We were told it was cancerous, then benign > (which Iannounced to everybody at church last week) and then on Tuesday — > adenocarcinoma. Of the four kinds of lung cancer, it is the "best" — > that is, it is operable. But I also read survival statics — only 40% > make the first year, only 10% make 5 years, and I was starting to grieve > before anything happened. Then I had a week of thinking it was benign. I > was so relieved. > But now I have to deal with the cancer again. I am so afraid of losing > him. He is being real macho and actually drove the day after he got out of > the hospital (while I was out at church!), told me about it yesterday! I > mean, they took his whole lung out and he’s driving? He just can’t sit > still. He’s talking about going back to work tomorrow. It’s not > realistic. I know he doesn’t like sitting around, but he’s still in a LOT > of pain. He won’t even get his industrial strength staples out til next > Tuesday. Fortunately, the weather has been excellent — 70 today and high > sixties throughout the week. But still……….. > Need a bunch of hugs, > Kathi
Sorry for this news… Ur boyfriend sure sounds like a fighter though! I hope together u can beat this. Big warm hugs, Ellie — "I myself have never been able to find out precisely what feminism is: I only know that people call me a feminist whenever I express sentiments that differentiate me from a doormat." — Rebecca West, 1913
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Hi I hope you don’t mind but I am posting this one again- I am wondering if anyone else with MS out there has uncontrollable tears, outbursts and emotional instability (almost too sensitive to handle high emotions without losing it. Unable to control my emotions- everything from love to hate to anger.) I have had so many outbursts over the last few years- I wonder if my MS could explain it… does anyone think it’s connected? Please respond to Kuti…@aol.com
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Hi there KutieK3! Yes, that was one of the things – along with lower back/hip pain (severe) that made my doc in Southern California start doing more tests. I could not complete a sentence, sit in church, cook a meal, talk on the phone to any member of my family back in Texas. My older daughter was living in Germany and younger daughter was still in Texas. My mother would get so exasperated she would either give the phone to my brother or just hang up. This went on from early ‘90 til about mid ‘96. Of course, it did taper off – the crying – but in the meantime we did move back to Texas. I had had CHF twice within 6 mos. my Primary Care doc, cardiologist, gastrologist and clinical physcologist were in agreement that I didn’t have long to live and needed to be close to family for their support. Hope this isn’t too dreary for you. Hopefully, you have a husband or significant other who is kind, sweet, attentative and good to you. I can not imagine my life these past 10 years without Chris. Please be good to yourself. Once, I realized that I was grieving over the loss of abilities and that I could do other things in place of those, I began to heal. My life is totally different from what it was 12 years ago BUT now I paint (some are hanging in stores and my home as well as friends’ homes) sew/serge, do crafts, knit and am trying to crochet – oh, yes, the computer – I even built a 486 and used it for 3 years. So, just a word of encouragement from this neck of the State of Texas – Hang in there, we will be here to listen, and help in any way we can. By the way, I like your User name! Love, Robbie C. Houston, TX
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Hiya Kutie, Emotional and rationality changes have been linked to the brain lesions of MS, as well as to the interferon and cortisone meds. You’re damned if you do and damned if you don’t take the meds. Chuck. Husband (and caregiver) of Bride of Chuck. "KutieK3" <kuti…@aol.com> wrote in message
news:20000108185553.14077.00000953@ng-ca1.aol.com… – Hide quoted text — Show quoted text -> Hi I hope you don’t mind but I am posting this one again- I am wondering if > anyone else with MS out there has uncontrollable tears, outbursts and emotional > instability (almost too sensitive to handle high emotions without losing it. > Unable to control my emotions- everything from love to hate to anger.) I have > had so many outbursts over the last few years- I wonder if my MS could explain > it… does anyone think it’s connected? > Please respond to Kuti…@aol.com
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On 08 Jan 2000 23:55:53 GMT, kuti…@aol.com (KutieK3) wrote: > Hi I hope you don’t mind but I am posting this one again- I am wondering if > anyone else with MS out there has uncontrollable tears, outbursts and emotional > instability (almost too sensitive to handle high emotions without losing it. > Unable to control my emotions- everything from love to hate to anger.) I have > had so many outbursts over the last few years- I wonder if my MS could explain > it… does anyone think it’s connected? > Please respond to Kuti…@aol.com
When you read about how much we go through to get diagnosed with MS and the crap we get from everyone before we get diagnosed, it is no surprise that we get emotionally off balance. We have to persist while others tell us we are hypochondriacs and while the medical profession tosses us from specialist to specialist who will not give us a diagnosis for fear of losing their backing by HMOs. There are few things more menatally disturbing than to be treated like a hypochondriac (LIAR) by the medical establishment, your friends, your co-workers, and your family for years. It certainly is a great foundation for emotional instability. By the time we do get diagnosed, too many of us are incapacitated to the point that we can’t "go postal" on all the people who deserve to be introduced to a good dose of disability. Either that, or we come to the realization that those people are just stupid and deserve the karmic retribution that will eventually find its way into their pathetic lives. God help you if you are overweight (as I am), and the medical *professionals* can’t see past your obesity. My emotional stability fights with my emotional instability when they start saying, "If you didn’t weigh so much, you wouldn’t have so many problems." For cripe’s sake!!!! I have MS, and you are trying to tell me I wouldn’t have it if I were thin? Rather than call it "emotional instability," let’s be realistic and call it "imposed emotional stability." Kris Lewis (real addy: [remove the spaces, of course] i t s i r k @ m i n d s p r i n g . c o m) Please, do not include me on your recipient list for bulk mailing. Thanks. I asked God for strength, and he gave me Richard … I count my blessings every day.
Response:
On Sun, 09 Jan 2000 06:02:47 GMT, unr…@domain.invalid (Kris Lewis) wrote:
OOPS! I wrote: > Rather than call it "emotional instability," let’s be realistic and call it > "imposed emotional stability."
I meant: Rather than call it "emotional instability," let’s be realistic and call it "imposed emotional instability." Kris Lewis (real addy: [remove the spaces, of course] i t s i r k @ m i n d s p r i n g . c o m) Please, do not include me on your recipient list for bulk mailing. Thanks. I asked God for strength, and he gave me Richard … I count my blessings every day.
Response:
On 08 Jan 2000 23:55:53 GMT, kuti…@aol.com (KutieK3) wrote: >Hi I hope you don’t mind but I am posting this one again- I am wondering if >anyone else with MS out there has uncontrollable tears, outbursts and emotional >instability (almost too sensitive to handle high emotions without losing it. >Unable to control my emotions- everything from love to hate to anger.) I have >had so many outbursts over the last few years- I wonder if my MS could explain >it… does anyone think it’s connected?
K. It’s called emotional lability — crying easily, laughing at stuff that isn’t really funny, bursts of anger. It’s one of the symptoms of MS. I found it much stronger in the earlier stages of the disease. I’ve kind of mellowed, or perhaps the symptom has burned itself out. Kate
Response:
hi kris c’mon tell us what you really think 
ya, the runaround sucks. but i think that our emotional volatility might also be organic. very early in the disease we show signs of short memory losses common to folks with PTSD. those typically result from hypercortisalemia a prolonged state of traumatic stress. the hippocampus which handles the type of memory that gets trashed here has the highest density of GC or glucocortical steroid receptors in the brain. the amigdala which pretty much reads our emotional environment so we can respond appropriatly has the second highest density of these receptors. hence it’s prolly second in line for damage. and emotions are notoriously difficult to quantify. it’s easier to measure memory with a word list than it is to measure emotional responses. so that little bit has been longer in comming. some researchers consider depression and anxiety to be part and parcel of MS. i agree with ‘em. cheers ed a skinny guy with MS — ———————————————————————– "The whole business of his life was in the plunder of his gaze…" Daniel Halevy on Degas | <include>ed’s 3d stuff | http://world.std.com/~ehill | 617-629-4625 |
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Yes, I do, and it can be the MS behind it. My problem was what I called "unjustified euphoria," or more crudely put just plain not giving a damn which was totally unlike me pre-diagnosis. I timidly asked my doctor about this and he congratulated me on noticing it. (He foudn that in general people who have MS recognize their depressions, not their highs.) Anyway, I take Elavil (Amitriptyline HCL 25mg. each night [which also has the added benefit of making me sleepy]) and it controls my euphoria completely. Normally, Elavil is a mood elevator but at low doses, such as what I take, it has been reported to be more of a mood modulator than elevator. Since I don’t like taking drugs, I’ve tried to stop it several times but the damn "I don’t give a damn" moods return. Elavil is fairly innocuous with virtually no side effects at the level that I take, so I’ve stopped fooling around and just continue with it. And it works! – Hide quoted text — Show quoted text -> Hi I hope you don’t mind but I am posting this one again- I am wondering if > anyone else with MS out there has uncontrollable tears, outbursts and emotional > instability (almost too sensitive to handle high emotions without losing it. > Unable to control my emotions- everything from love to hate to anger.) I have > had so many outbursts over the last few years- I wonder if my MS could explain > it… does anyone think it’s connected? > Please respond to Kuti…@aol.com
Response:
I believe it can be caused by situations such as the medical system, the internal brain changes, or a combination of both. One of my previous neurologists said it is connected with neurological changes in the brain….sure wish that man hadn’t left town. Two of my drs are excellent, caring drs. Some of the more recent drs have left me feeling "chewed up & spit out behind a dumpster in a bad side of town". The source of this feeling is easy to distinguish from the more difficult to understand lows of neurological effects. Carole Ford – Hide quoted text — Show quoted text -ed hill wrote: > hi kris > c’mon tell us what you really think > ya, the runaround sucks. but i think that our emotional volatility might > also be organic. very early in the disease we show signs of short memory > losses common to folks with PTSD. those typically result from > hypercortisalemia a prolonged state of traumatic stress. > the hippocampus which handles the type of memory that gets trashed here > has the highest density of GC or glucocortical steroid receptors in the > brain. the amigdala which pretty much reads our emotional environment so > we can respond appropriatly has the second highest density of these > receptors. > hence it’s prolly second in line for damage. and emotions are notoriously > difficult to quantify. it’s easier to measure memory with a word list than > it is to measure emotional responses. so that little bit has been longer > in comming. > some researchers consider depression and anxiety to be part and parcel of > MS. i agree with ‘em. > cheers > ed > a skinny guy with MS > — > ———————————————————————– > "The whole business of his life was in the plunder of his gaze…" > Daniel Halevy on Degas > | <include>ed’s 3d stuff | http://world.std.com/~ehill | 617-629-4625 |
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{{{{{{{{{{{Kathi}}}}}}}}}}}} This is just a start. I’m so sorry Kathi… I truly am. Love, Tee — MS MounTain http://www.dsgnworks.com/~msmt/ RedLady’s Home http://www.angelfire.com/ky/redlady/index.html "Kathi Matthews" <kamatth…@aol.com> wrote in message
news:20000112190941.24619.00001068@nso-ch.aol.com… | And I guess I am still numb. We were told it was cancerous, then benign (which | Iannounced to everybody at church last week) and then on Tuesday — | adenocarcinoma. Of the four kinds of lung cancer, it is the "best" — that is, | it is operable. But I also read survival statics — only 40% make the first | year, only 10% make 5 years, and I was starting to grieve before anything | happened. Then I had a week of thinking it was benign. I was so relieved. | | But now I have to deal with the cancer again. I am so afraid of losing him. | He is being real macho and actually drove the day after he got out of the | hospital (while I was out at church!), told me about it yesterday! I mean, | they took his whole lung out and he’s driving? He just can’t sit still. He’s | talking about going back to work tomorrow. It’s not realistic. I know he | doesn’t like sitting around, but he’s still in a LOT of pain. He won’t even | get his industrial strength staples out til next Tuesday. Fortunately, the | weather has been excellent — 70 today and high sixties throughout the week. | But still……….. | Need a bunch of hugs, | Kathi
Response:
In article <3878baa1.173491…@nntp.mindspring.com>, kat…@mindspring.com (Kate Murphy) writes: >It’s called emotional lability — crying easily, laughing at stuff >that isn’t really funny, bursts of anger. It’s one of the symptoms of >MS. >I found it much stronger in the earlier stages of the disease. I’ve >kind of mellowed, or perhaps the symptom has burned itself out.
I think we learn to control it after a time. Of course, 3 Prozac a day help a lot too. :=} Kathi
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Kris, been there done that!!! I wish I could visit a blind docter, sometimes I think the moment they lay their eyes on me they think their geniuses and diagnosis me with obesity, no shit sherlock!!! The sick part is some part of me was almost happy when I came down with ON, lets see them cure that with a diet!! Ohh, now we know, all those years you came to us with painful legsand hips, you weren’t crazy or plain lazy and fat! Whoops!!! Now they take me more seriously anyway. I wish the weight would drop, its not like I don’t know it would make moving easier! Mary http://community.webtv.net/meochinani/Maryspersonal http://community.webtv.net/meochinani/MSMomsPage
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{{{{{{{{{Kathi}}}}}}}}}}} Both of us are sending our prayers and good thoughts your way. Jill and Paul In article <20000112190941.24619.00001…@nso-ch.aol.com>, – Hide quoted text — Show quoted text -kamatth…@aol.com (Kathi Matthews) wrote: >And I guess I am still numb. We were told it was cancerous, then benign (which >Iannounced to everybody at church last week) and then on Tuesday — >adenocarcinoma. Of the four kinds of lung cancer, it is the "best" — that is, >it is operable. But I also read survival statics — only 40% make the first >year, only 10% make 5 years, and I was starting to grieve before anything >happened. Then I had a week of thinking it was benign. I was so relieved. > But now I have to deal with the cancer again. I am so afraid of losing him. >He is being real macho and actually drove the day after he got out of the >hospital (while I was out at church!), told me about it yesterday! I mean, >they took his whole lung out and he’s driving? He just can’t sit still. He’s >talking about going back to work tomorrow. It’s not realistic. I know he >doesn’t like sitting around, but he’s still in a LOT of pain. He won’t even >get his industrial strength staples out til next Tuesday. Fortunately, the >weather has been excellent — 70 today and high sixties throughout the week. >But still……….. >Need a bunch of hugs, >Kathi
Response:
{{{Kathy}}} Hang in there, I am so sorry to hear this. My thoughts and prayers are with you! — Take Care ;>) JD *Don’t worry: the answer’s at the back of the book. mlafrance <mdlafra…@home.com> wrote in message
news:aZ8f4.56645$_E6.443172@news1.rdc1.bc.home.com… – Hide quoted text — Show quoted text -> I know from experience (we probably all do), and it is much easier to say > than to do, but try to live one day at a time. Nothing else will change the > outcome. Make every day count. > 13 years ago my father had throat cancer – they gave him a 30% chance, and > he’s still going strong. > Wow, that almost sounds like preaching, but my thoughts are with you. > Dawn L.
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