Question:
: : : : You sweet old optimist, you 
: : : : I’d be willing to help but I have *very* strong : : reservations about the effectiveness of any organisation : : that wasn’t driven by people with the qualifications to : : stick firecrackers up the backsides of the medical : : profession. To me, it is the lamentably poor treatment : : afforded by some doctors that needs overhaul. Could : : a ‘consumer’ pressure group change that? Possibly : : it could, but I’d need some persuading. : : Well, I’ve been thinking along the lines of an organization : with strong advisory pannel of MDs. If some doctors familiar : with PD (like Dr Shipko, Dr Casada, and the like) could form : such a pannel with assistance from us, we could produce a : regular newsletter that the medical community may take serious : notice of. Such a newsletter could also educate people with : PD-related articles, as well as report PD-related events. : : How’s that sound for starters? : : We could get things rolling with a purely volluntary effort : at first; communicating via e-mail or whatever. I’ll be : happy to organize production of the newsletter, which would : be approved and/or guided by our advisory pannel. And, at : some point in future, we might try to develop a budget to : support advisory pannel meetings and possibly things like : the PDI events. : : But – IF NOTHING ELSE – just producing a newsletter backed : by a pannel of MDs should have some influence. Arthur, I think Dr. Kernodle might be interested in helping us with something like this. IMO his main focus is helping us who have panic disorder. Scott H.
Response:
Arthur, I think Dr. Kernodle might be interested in helping us with something like this. IMO his main focus is helping us who have panic disorder.
From what I’ve heard about his work, via this NG, my impression is that Dr. Kernodle’s input would be very useful indeed. — Gary Cooper
Response:
Gary Cooper schreef: Arthur, I think Dr. Kernodle might be interested in helping us with something like this. IMO his main focus is helping us who have panic disorder. From what I’ve heard about his work, via this NG, my impression is that Dr. Kernodle’s input would be very useful indeed. — Gary Cooper
I read his book and it is the best I have read on the subject yet. Philip Peters
Response:
: : Arthur, : : I think Dr. Kernodle might be interested in helping us with something like : this. IMO his main focus is helping us who have panic disorder. : : Scott H. Could you e-mail me contact info for him? His e-mail or postal address? Best Wishes, Arthur
Response:
- Hide quoted text — Show quoted text – : : Well, as *luck* would have it – they have just announced the end of : publication of thier newsletter. I received a letter today stating that : Januarys of 98 was the last one. The letter also states that back issues : are available and the website at http://www.npadnews.com will continue : temporary. Soooooo, there goes another link that had provided me with much : useful info and hope over the past few years. : : ::throws up hands thinking this has been a bad week:: REALLY ???? !!!! Are you sure about this Gwen???
Yup, have the letter right here on my desk from the headquarters in Santa Rosa, CA. What on earth is happening???
I dunno, but I am REALLY upset about this. It was thru them I found out about the Patient in Need Program, new meds and many hope inspiring books and research. According to thier letter, grant funding has become *increasingly difficult to obtain*. It says this year is the first that newsletter contributions have been unable to maintain the grant level needed for publication. How is it that something so bad as PD is getting so neglected???
Feels like a big step back to me. Even had a nice anxiety attack tonight with this news along with my local BBS closing and some other personal stuff coming down. Really really sucks, er….is sad. My God and Goddess!!!
Mine too! :) We’ve got to do something!!!
Wish I knew what. I watch this place degrade into wars and get news like this and it is quite upsetting. Damn it!
Double damn. Far too many people are suffering!
Yup, more and more each day. This makes me very upset!!!
That makes 2 of us. Hope you had a better night than I did. Am hitting the wine now as I don’t really care about the fallout serotonin wise right at this point. :) Growlingly….. Gwen
Response:
Arthur Anderson schreef: : : Great! Count me in. But what about us, poor PD-sufferers in the Old : World of whom only a few if any are around here at ASAP? PD is a global human problem, Philip. I’ll do everything I can to help any PD sufferer anywhere. Best Wishes, Arthur
I know and so would I but there are some practical problems I’m afraid… P.P.
Response:
: : What on earth is happening??? : : I dunno, but I am REALLY upset about this. It was thru them I found out : about the Patient in Need Program, new meds and many hope inspiring books : and research. According to thier letter, grant funding has become : *increasingly difficult to obtain*. It says this year is the first that : newsletter contributions have been unable to maintain the grant level needed : for publication. Might have something to do with the Congrssionally declared "Decade of the Brain" gradually comming to an end. : How is it that something so bad as PD is getting so : neglected??? : : Feels like a big step back to me. Even had a nice anxiety attack tonight : with this news along with my local BBS closing and some other personal stuff : coming down. Really really sucks, er….is sad. I know the feeling. I just pushed back my visit with my grandmother a second day because my anxiety makes it hard for me to get my act together. : We’ve got to do something!!! : : Wish I knew what. I watch this place degrade into wars and get news like : this and it is quite upsetting. Well… on the bright side… this news more clearly establishes what is needed. The ADAA wont address panic, and NPAD is on the wane, so there is indeed a need for a PD newsletter backed by a pannel of doctors. Just a matter of getting this organized and moving now. : That makes 2 of us. Hope you had a better night than I did. Am hitting the : wine now as I don’t really care about the fallout serotonin wise right at : this point. :) Now, now, Gwen. Be good to yourself. Best Wishes, Arthur
Response:
: : Well, darn – I gave up on the ADAA long ago, Arthur. I must be getting slow. 
: Used to get thier : newsletters and switched NPAD as they were quite empathic to PD and anxiety. You bring up a good point! NPAD is an established newsletter that does have the support of some MDs. So I guess the question becomes: What is NPAD not doing to raise awareness of PD issues among doctors and the general public? We need to better define what NPAD, the ADAA, and the like are not doing to promote awareness and education regarding PD, and how we might improve the situation. Best Wishes, Arthur
Response:
: Used to get thier : newsletters and switched NPAD as they were quite empathic to PD and anxiety. You bring up a good point! NPAD is an established newsletter that does have the support of some MDs. So I guess the question becomes: What is NPAD not doing to raise awareness of PD issues among doctors and the general public?
Well, as *luck* would have it – they have just announced the end of publication of thier newsletter. I received a letter today stating that Januarys of 98 was the last one. The letter also states that back issues are available and the website at http://www.npadnews.com will continue temporary. Soooooo, there goes another link that had provided me with much useful info and hope over the past few years. ::throws up hands thinking this has been a bad week:: Gwen
Response:
Arthur Anderson schreef: – Hide quoted text — Show quoted text – : : You sweet old optimist, you : : I’d be willing to help but I have *very* strong : reservations about the effectiveness of any organisation : that wasn’t driven by people with the qualifications to : stick firecrackers up the backsides of the medical : profession. To me, it is the lamentably poor treatment : afforded by some doctors that needs overhaul. Could : a ‘consumer’ pressure group change that? Possibly : it could, but I’d need some persuading. Well, I’ve been thinking along the lines of an organization with strong advisory pannel of MDs. If some doctors familiar with PD (like Dr Shipko, Dr Casada, and the like) could form such a pannel with assistance from us, we could produce a regular newsletter that the medical community may take serious notice of. Such a newsletter could also educate people with PD-related articles, as well as report PD-related events. How’s that sound for starters? We could get things rolling with a purely volluntary effort at first; communicating via e-mail or whatever. I’ll be happy to organize production of the newsletter, which would be approved and/or guided by our advisory pannel. And, at some point in future, we might try to develop a budget to support advisory pannel meetings and possibly things like the PDI events. But – IF NOTHING ELSE – just producing a newsletter backed by a pannel of MDs should have some influence. Best Wishes, Arthur
Great! Count me in. But what about us, poor PD-sufferers in the Old World of whom only a few if any are around here at ASAP? Philip P.
Response:
Honestly, I just think the ADAA is stuck in a rut. They began a while back, when it seemed that all anxiety disorders were psychological, so they have allot of momentum in supporting psychotherapy programs. These days, they’re sort of stuck in that groove and don’t seem interested in budging any. I guess they still serve a purpose, but it is misleading of them of feign an interest in PD, and it somewhat violates their own mission objectives.
There is a problem inherent in all self-help groups, IMO, Arthur and it’s the same one that afflicts psychologists: they aren’t allowed to write prescriptions It’s a horrible thing to say, but I would suggest that it is *in their interests* to promote the notion that self-help via CBT-style exercises alone can cure anxiety disorders – if not, what else do they do with themselves, other than tell you to see a doctor? I’ve had experience with so-called self-help groups here in the UK and they gave me the horrors. Then again, save for my local horticultural society (!) I’m not exactly a joining sort of person. <Rousing chorus of ‘you don’t say!’ snootily ignored Oh, don’t get so negative! We can do whatever we set our panic-ridden minds to do. Besides, even if we did get into a rut like the ADAA, at least it would be a rut supporting the PD perspective. It never ceases to amaze me how a terrible disorder like PD could be so overlooked and neglected for centuries. We’ve got the fires of Hell within us, and I say we put those fires to damn good use! : Sorry to see you (and Dr. S.) so shabbily treated. Well, sometimes these things are a blessing in disguise.
You sweet old optimist, you I’d be willing to help but I have *very* strong reservations about the effectiveness of any organisation that wasn’t driven by people with the qualifications to stick firecrackers up the backsides of the medical profession. To me, it is the lamentably poor treatment afforded by some doctors that needs overhaul. Could a ‘consumer’ pressure group change that? Possibly it could, but I’d need some persuading. — Gary Cooper
Response:
: : You sweet old optimist, you : : I’d be willing to help but I have *very* strong : reservations about the effectiveness of any organisation : that wasn’t driven by people with the qualifications to : stick firecrackers up the backsides of the medical : profession. To me, it is the lamentably poor treatment : afforded by some doctors that needs overhaul. Could : a ‘consumer’ pressure group change that? Possibly : it could, but I’d need some persuading. Well, I’ve been thinking along the lines of an organization with strong advisory pannel of MDs. If some doctors familiar with PD (like Dr Shipko, Dr Casada, and the like) could form such a pannel with assistance from us, we could produce a regular newsletter that the medical community may take serious notice of. Such a newsletter could also educate people with PD-related articles, as well as report PD-related events. How’s that sound for starters? We could get things rolling with a purely volluntary effort at first; communicating via e-mail or whatever. I’ll be happy to organize production of the newsletter, which would be approved and/or guided by our advisory pannel. And, at some point in future, we might try to develop a budget to support advisory pannel meetings and possibly things like the PDI events. But – IF NOTHING ELSE – just producing a newsletter backed by a pannel of MDs should have some influence. Best Wishes, Arthur
Response:
: : Well, as *luck* would have it – they have just announced the end of : publication of thier newsletter. I received a letter today stating that : Januarys of 98 was the last one. The letter also states that back issues : are available and the website at http://www.npadnews.com will continue : temporary. Soooooo, there goes another link that had provided me with much : useful info and hope over the past few years. : : ::throws up hands thinking this has been a bad week:: REALLY ???? !!!! Are you sure about this Gwen??? What on earth is happening??? How is it that something so bad as PD is getting so neglected??? My God and Goddess!!! We’ve got to do something!!! Damn it! Far too many people are suffering! This makes me very upset!!! Blast Wishes, Arthur
Response:
: : Great! Count me in. But what about us, poor PD-sufferers in the Old : World of whom only a few if any are around here at ASAP? PD is a global human problem, Philip. I’ll do everything I can to help any PD sufferer anywhere. Best Wishes, Arthur
Response:
Just thought I’d share this latest episode in my saga to better understand the Anxiety Disorder Association of America (ADAA) and their stance on PD. Below is a copy of my e-mail to them, followed by their reply…
Well, darn – I gave up on the ADAA long ago, Arthur. Used to get thier newsletters and switched NPAD as they were quite empathic to PD and anxiety. I go with what appeals to my heart and mind and ADAA lost me years ago. Gwen
Response:
Well…it raises the question of whether those doctors would agree, aside of anything else It might help if Dr. Casada would let us know his qualifications and experience in practise this field and whether he has any views on the subject? As I say, I’m not against the idea, but I still need some convincing, I’m afraid!
For now, let’s leave it that I’m interested. I don’t know what qualifications and experience you are looking for, but I’m an assistant professor of psychiatry at the University of Texas. I specialize in treatment of the effects of trauma (especially PTSD) but have receive additional clinical training in the anxiety disorders. I currently work in two anxiety disorder clinics and a PTSD speciality clinic. I don’t know if I could prove useful to a group such as this in any official way. Therefore, I just make myself available and open to suggestions like Arthur has made. If I can reasonably be of help, then great. If not, then possibly in the future. I am certainly willing to listen to further thoughts regarding this from Arthur, Gary, and others (Dr. Shipko, etc). Regards, John
Response:
Well, I’ve been thinking along the lines of an organization with strong advisory pannel of MDs. If some doctors familiar with PD (like Dr Shipko, Dr Casada, and the like) could form such a pannel with assistance from us, we could produce a regular newsletter that the medical community may take serious notice of. Such a newsletter could also educate people with PD-related articles, as well as report PD-related events. How’s that sound for starters?
<snipped for space Well…it raises the question of whether those doctors would agree, aside of anything else It might help if Dr. Casada would let us know his qualifications and experience in practise this field and whether he has any views on the subject? As I say, I’m not against the idea, but I still need some convincing, I’m afraid! — Gary Cooper
Response:
- Hide quoted text — Show quoted text – Well, I’ve been thinking along the lines of an organization with strong advisory pannel of MDs. If some doctors familiar with PD (like Dr Shipko, Dr Casada, and the like) could form such a pannel with assistance from us, we could produce a regular newsletter that the medical community may take serious notice of. Such a newsletter could also educate people with PD-related articles, as well as report PD-related events. How’s that sound for starters? We could get things rolling with a purely volluntary effort at first; communicating via e-mail or whatever. I’ll be happy to organize production of the newsletter, which would be approved and/or guided by our advisory pannel. And, at some point in future, we might try to develop a budget to support advisory pannel meetings and possibly things like the PDI events. But – IF NOTHING ELSE – just producing a newsletter backed by a pannel of MDs should have some influence. Best Wishes, Arthur
Sounds interesting. Can’t wait to hear more. Regards, John
Response:
: : Frankly, Arthur, they sound like they have developed : that familiar arteriosclerosis which almost inevitably : afflicts charities and similar organisations after a : while. Honestly, I just think the ADAA is stuck in a rut. They began a while back, when it seemed that all anxiety disorders were psychological, so they have allot of momentum in supporting psychotherapy programs. These days, they’re sort of stuck in that groove and don’t seem interested in budging any. I guess they still serve a purpose, but it is misleading of them of feign an interest in PD, and it somewhat violates their own mission objectives. : Sadly, I rather fear the same would apply to any organisation : that we might spin-off from here, but it’s a noble thought. Oh, don’t get so negative! We can do whatever we set our panic-ridden minds to do. Besides, even if we did get into a rut like the ADAA, at least it would be a rut supporting the PD perspective. It never ceases to amaze me how a terrible disorder like PD could be so overlooked and neglected for centuries. We’ve got the fires of Hell within us, and I say we put those fires to damn good use! : Sorry to see you (and Dr. S.) so shabbily treated. Well, sometimes these things are a blessing in disguise. Best Wishes, Arthur
Response:
Just thought I’d share this latest episode in my saga to better understand the Anxiety Disorder Association of America (ADAA) and their stance on PD. Below is a copy of my e-mail to them, followed by their reply…
<Lots snipped Guess I’m beginning to understand Dr Shipko’s frustrations regarding the ADAA and PD. I had always assumed that the organization would have an interest in PD (it being an anxiety disorder and all), but that doesn’t seem to be the case. Guess it’s time for us to get our act together and start an international association for PD.
Frankly, Arthur, they sound like they have developed that familiar arteriosclerosis which almost inevitably afflicts charities and similar organisations after a while. Sadly, I rather fear the same would apply to any organisation that we might spin-off from here, but it’s a noble thought. Sorry to see you (and Dr. S.) so shabbily treated. — Gary Cooper
Response:
Hi Folks, Just thought I’d share this latest episode in my saga to better understand the Anxiety Disorder Association of America (ADAA) and their stance on PD. Below is a copy of my e-mail to them, followed by their reply… Dear (name snipped) I’ve been wondering what the ADAA’s position is on the medical aspects of panic disorder. Last December, I had the opportunity to briefly talk with Dr Ballenger at a PBS production we were involved with, and found that he and I shared a number of views. But I’m still unclear on the ADAA’s views and support of the medical issues arising in recent years. I was also wondering about the status of the article I wrote for you last August; entitled "Unfelt Hope." I have heard nothing for months regarding editorial comment or publishing. Please let me know how I can be of further help. I have consistently promoted the ADAA through my activities and would like to further involve the ADAA. Working with the international community of anxiety and panic disorders, we have made great strides in awareness and education with coordinated efforts involving doctors, therapists, sufferers, family and friends. Best Wishes, Arthur Reply… We are unable to comment on this issue as an organization. However, we encourage you to continue these discussions with professionals like Dr. Ballenger who are members of our associationand represent us. Thank you, Guess I’m beginning to understand Dr Shipko’s frustrations regarding the ADAA and PD. I had always assumed that the organization would have an interest in PD (it being an anxiety disorder and all), but that doesn’t seem to be the case. Guess it’s time for us to get our act together and start an international association for PD. Best Wishes, Arthur
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