Trauma – PTSD

Question:

Randall Bart <Barti…@att.spam.net> wrote in message <news:d1ut0uksbvjptvdpnie6rjsgek092t9f53@4ax.com>… > ‘Twas Tue, 04 Dec 2001 21:09:35 GMT  when the wise and venerated TSNW > <tourettenoww…@home.com> enlightened alt.support.tourette with these > thought provoking words: > >> Has your son had an EEG recently? > >Four years ago … regular, 24-hour, and sleep-deprived EEGs. > >> I would really push for that to be done. > >If they didn’t show anything then, could something have changed in four > >years? > YES!

And YES AGAIN!!!! eheheh Just to double check….. 4 years is a long time. And Benita’s right….no blaming yourself for anything TSNW. You are a very thorough mom who is dedicated to finding the answer. ;o) I just hope that the answer is found soon….no child should have to suffer. Big hugs…..Laura ;o)

Response:

In article <LyBP7.1610$Lo2.364209…@newssvr15.news.prodigy.com>, "BENITA – Hide quoted text — Show quoted text -M WINSLOW" <Ben…@prodigy.net> wrote: > > 1.  His birthday sleepover this weekend triggered the migraine > > (apparently they didn’t go to sleep until 4 am). > > 2.  It really is Lyme, and I shouldn’t have stopped the antibiotics. > > 3.  It’s the catapres. > > The neuro was right — I shouldn’t have stopped the antibiotics.  He > > hadn’t had a headache since the end of June.  It’s my fault that now I > > can’t sort it out, and my son is spending his birthday on morphine and > > oxycontin. > Hey, Whoa, wait a minute, here. It is so easy to blame ourselves for things > that are happening to our kids, but PLEASE don’t lay this on yourself! You > are a devoted and frightened mom who is trying to do the very best she can > for her child. Your son is spending his birthday on morphine and oxycontin > because he has a crushing headache. You did not cause it. Taking your son > off antibiotics after…what was it? six months? eight?…is a step I think > any reasonable mom would take. You have investigated and researched and > suffered through this with your son for so long… > This is not your fault. > Hugs, > Benita

Just because the onset of the headache correlated with a number of novel things doesn’t mean that any of them were causative (I could tell a number of embarrassing stories about the things that correlated with my first pregnancy that I thought/hoped were causative, but weren’t). Your son hasn’t had a headache since June.  That is good.  Maybe this was time for another headache (given his current state of health, stress, whatever) and nothing you could have done would have prevented it. It’s possible that the phenomenal growth spurt is linked to the headaches in a benign way – maybe the arteries aren’t quite keeping up with other aspects of the growth.  Do for sure have brain scan, sleep test and anything else that will help rule out nasty stuff. I feel for you so much – the guilt and the sense of impotence. lesliedelong

Response:

"> And Benita’s right….no blaming yourself for anything TSNW. Heck, yeah! Blaming yourself is understandable, but, I must say, in my clinical opinion, TSNW, "CUT IT OUT!!!" Turn the frame around – if it weren’t for your diligence, ability to learn the medical issues,  research abilities, advocacy abilities, perseverence in seeking out different docs and experts,  etc etc, God KNOWS what shape your son would be in right now! He probably owes his very LIFE to you! I’m confident that you’ll get to the root of this, but in the meantime, will you PLEASE be gentler on yourself? I am sure *HE* doesn’t blame you. TSNW, don’t beat yourself up. let us do that Best, Jo

Response:

> I feel for you so much – the guilt and the sense of impotence. > lesliedelong

I, too, feel so bad for TSNW, her son, and their ongoing frustration (and pain) ( But, I must say I also feel so ‘helpless’ that Leslie is impotent. Are you sure you don’t spell it "Lesley"? :–) I know I will pay for this jo’s alter ego

Response:

BENITA M WINSLOW wrote: > You did not cause it. Taking your son > off antibiotics after…what was it? six months? eight?…is a step I think > any reasonable mom would take.

Thanks, Benita.  It has been almost ten months.  I just got sick of all the doctors and being lectured about having him on antibiotics for so long and some of the quackery in the Lyme community, and decided to just take him off the antibiotics to see what happened.  It was wrong of me, because I *should* have thought to at least wait until school break in December, rather than to assume that *I* knew best.  It would have been easier to sort out if the catapres would work if I had not stopped the antibiotics.  Now I won’t know unless we decide to try it again sometime in the future. — Tourette Syndrome – Now What? http://members.home.net/tourettenowwhat

Response:

- Hide quoted text — Show quoted text -Randall Bart wrote: > ‘Twas Tue, 04 Dec 2001 21:09:35 GMT  when the wise and venerated TSNW > <tourettenoww…@home.com> enlightened alt.support.tourette with these > thought provoking words: > >> Has your son had an EEG recently? > >Four years ago … regular, 24-hour, and sleep-deprived EEGs. > >> I would really push for that to be done. > >If they didn’t show anything then, could something have changed in four > >years? > YES!

I will press for new EEG and sleep study … What is school good for, anyway? — Tourette Syndrome – Now What? http://members.home.net/tourettenowwhat

Response:

‘Twas Tue, 04 Dec 2001 21:09:35 GMT  when the wise and venerated TSNW <tourettenoww…@home.com> enlightened alt.support.tourette with these thought provoking words: >> Has your son had an EEG recently? >Four years ago … regular, 24-hour, and sleep-deprived EEGs. >> I would really push for that to be done. >If they didn’t show anything then, could something have changed in four >years?

YES! — RB |  

Related Posts